3 Ways You Didn't Know That Help Your Child with SMA Move Better

When Spinal Muscular Atrophy (SMA) begins, the body starts to rapidly turn off functions to the body to sustain life-sustaining organs for as long as possible.  

When I gave birth to my first daughter with SMA, we had no idea why she didn't move. At her two week appointment, the Pediatrician said, "Let's wait a month and see where she is at then."

 I knew I couldn't wait that long; Something was wrong now, so I started in-home therapy with her. From two weeks old to six weeks old, I worked with her every day. Day by day, I saw increased movement even though I could see her becoming weaker and weaker. 

Fast forward 2-and-a-half-years later. I had another baby with SMA. At birth, we didn't know it. At seven days old, we drew blood samples sent them to a lab, and a week later, the doctor said, "She has Spinal Muscular Atrophy too." 

Before the blood draw, I knew my baby had SMA. With my first...