When Spinal Muscular Atrophy (SMA) begins, the body starts to rapidly turn off functions to the body to sustain life-sustaining organs for as long as possible.
When I gave birth to my first daughter with SMA, we had no idea why she didn't move. At her two week appointment, the Pediatrician said, "Let's wait a month and see where she is at then."
I knew I couldn't wait that long; Something was wrong now, so I started in-home therapy with her. From two weeks old to six weeks old, I worked with her every day. Day by day, I saw increased movement even though I could see her becoming weaker and weaker.
Fast forward 2-and-a-half-years later. I had another baby with SMA. At birth, we didn't know it. At seven days old, we drew blood samples sent them to a lab, and a week later, the doctor said, "She has Spinal Muscular Atrophy too."
Before the blood draw, I knew my baby had SMA. With my first...